The Bond That Breaks and Fulfills My Heart.

Since arriving in Little Rock my family has been through every emotion. I will honestly say that I was not prepared for what I saw that first night.  I came down to see my Dad but when I got to his room I found a stranger in his bed, surrounded by our family. A few short minutes after I arrived they needed to have us all leave the room so they could change his bedding. That gave me a few minutes to step away from everyone to collect myself and not try to be strong in front of my Dad. I just remember thinking, "That's not my Dad." over and over. It was just so surreal. I knew things had gotten bad. I had already been wrestling with the fact that all the bad news I got and being told things like "they're just trying to make him comfortable" and "to give us quality time together" meant that we were facing the worst situation possible. I can't bring myself to say what all of that actually meant, but you get it. And even though I knew what all those cues were, I still wasn't ready for what I saw. Taylor had told me that dealing with him would be comparable to a wasted 3 year old. Even that didn't get through to me, but she was exactly right. We had to treat Dad like a child. Tell him not to pull out his IV's, or his other various chords. He would continuously ask for Dexter even though I had told him several times I didn't bring him with me. My heart broke each time he asked. Seeing him so forgetful was startling. He never quite grasped the fact that Dexter wasn't with me. Part of the reason it broke my heart was because I started to feel like maybe if I had brought him then my Dad would bounce back. You hear stories of Alzheimers patients who won't remember who anyone is and then all the sudden the incredible love that they have for someone will stir up feelings and memories that seemed lost forever. I felt like maybe Dexter could have brought that out of him, that he would be him again even if only for a few minutes and it would be driven by the unconditional love of a grandparent. I felt so guilty for not bringing him. For not letting my Dad have one more moment with his grandson. For not giving my son another moment with his TuTu man.

There are a lot of things that have broken me down. Lots. Most of them I have gotten somewhat of a hold on and can start to deal with them without just completely losing it. But not when it comes to my son.

I remember a few years ago I dated this guy who never wanted to get married or have kids. For whatever reason, I started convincing myself that if I were with him, I could be ok with never being married or having kids. I just loved him, so I'd give those things up. (The thought now is so mushy and disgusting it makes me gag) But not long after I began accepting those things, I saw a picture of one of my friends kids holding an umbrella in the rain. Except, it wasn't rain. My Dad had put the sprinkler on top of the garage to make it "rain" outside. I guess Addy had really wanted to play in the rain that day so my Dad made it happen. I knew right then that I couldn't go the rest of my life without seeing my Dad have those moments with kids that I would one day have. My Dad loves kids, probably because he's still a kid himself. I envisioned myself screaming after opening doors and cabinets that Dad had taught my kids to booby trap. Seeing my Dad play catch with them. Seeing him and my Mom sitting in fold up chairs at their sports games. And finally I had a vision of him holding a baby in his arms. I knew that my kids and Dad would be best friends.

Ever since Dad got sick I have had this fear in the back of my mind that I try not to address because I want to be positive and not spread negative energy. It's hard to even say now because I just don't want to come to terms with how bad things are. But I have always been so scared that Dad would too sick to do things with Dexter before he was old enough to remember them. Or, even worse, the thing that I fear the most, is Dad being gone before Dexter is old enough to remember him. This week I keep breaking down because all the things I'm afraid of are becoming a reality. Dad is starting to move in the right direction, but he has a VERY long way to go. And with all the things that are starting to head in the right direction in terms of his heart rate and breathing, etc, the Myeloma is still raging war on his body. That's not getting any better. There's no hope for a second remission. There's only hope for a little bit of quality time. With the realization of that comes the knowledge that Dad will not be with Dexter when he has his first Cozy burger. He won't be there for Dexter's first baseball game, or take Dexter out on his first fishing trip.

Luckily, there are a lot of things that Dexter did get to do with my Dad. He was held by him on the day he was born, just like I had visioned. He rode around in his first tricycle while Dad pushed him. He got to have Dad push him on his swing. Eat cotton candy and drink limeades from Sonic while I was gone. They had so many beautiful moments together that, luckily, I have pictures and videos of. It just breaks my heart that his memory of my Dad will be reduced to pictures, videos and stories. He will be told of the relationship that they had instead of getting to experience it and continue to build that bond. He will get to hear his sisters tell about their memories, but won't get to share any himself. My heart aches at the thought of it.

Even though I truly feel like my heart is shattering as I think about it, I do thank God for the bond that they have. They both love each other dearly. Dad lights up every time he sees Dexter and Dexter does every time he sees Dad. It's such a heart warming thing to see.